HOPE FOR CROHN'S
501(c)(3) Charitable Fundraising Organization
HEALTH SCIENCES
- Camp Go Beyond provides a relaxing and fun week to children ages 7-17 with IBD. Camp is held in Livermore, CA. Camp Go Beyond formerly called Camp Gut Busters was started in 2001 by Dr. Mel Heyman, Chief of Pediatric Gastroenterolgy at UCSF Medical School in San Francisco. Our mission is to provide a fun and free camp experience for children with Inflammatory Bowel Diseases, also known as Crohn's Disease and Ulcerative Colitis
- Camp Oasis is "A Fun Place for Learning, Playing, and Healing" which is presented by Crohn's & Colitis Foundation of America (CCFA). This is a co-ed residential camp program suppoered by outstanding medical staff and is located throughout the United States, Californis, Colorado, Georgia, Michigan, Minnesota, Missouri, New York, Pennyslyvania, Texas, Washington, Wisconsin, and West Virginia.
Privacy Policy
Hope for Crohn's® ("Hope For Crohn's" or "we" or "us" or "our") is committed to responsible information handling practices. You can visit most pages on the Sites (as defined below) without giving us any information about yourself, but sometimes we need information to provide information or services that you request. This Privacy Policy explains data collection and use in those situations. By visiting the Sites, you consent to the information practices described in this Privacy Policy.
This Privacy Policy applies to the following sites:www.hopeforcrohns.org.(and each sub-domain associated with this URL) and other websites operated by or for Hope For Crohn's (collectively, the "Sites"). This Privacy Policy does not apply to other sites that may be accessible through the Sites. This Privacy Policy does not apply to the practices of persons or entities that Hope For Crohn's does not control, manage or employ. The Sites contain links to other sites that are operated by third parties, including, but not limited to, third party sites that may display the name, trademarks, service marks and logos of Hope For Crohn's. We encourage you to read the privacy policies of those other sites to learn how they collect and use information about you.
In order to fully understand your rights, we encourage you to read this Privacy Policy as well as our Use of Terms. Hope For Crohn's reserves the right at any time and without notice to change this Privacy Policy simply by posting such changes on the Sites. Any such change will be effective immediately upon posting.Where can I get more information about the Privacy Policy?
If you have any questions about this Privacy Policy, please contact us at:
Hope For Crohn's
Phone: 1-925-264-9767
info@hopeforcrohns.org
"The Specific Carbohydrate Diet™ is based on the principle that specifically selected carbohydrates, requiring minimal digestive processes, are well absorbed and leave virtually none to be used for furthering microbial overgrowth in the intestine. As the microbial population decreases due to lack of food, its harmful byproducts also decrease, freeing the intestinal surface of injurious substances. No longer needing protection, the mucus-producing cells stop producing excessive mucus, and carbohydrate digestion is improved. Malabsorption is replaced by absorption" -- Elaine Gottschalk
Quick Links for more information>
>Breaking the Vicious Cycle by Elaine Gottschalk
Therapies that maintain remission for Crohn's patients are essential. In order to help find a cure, several tools are utilized to form objectives for research.
Quick Links to help advance research>
>ClinicalTrials.gov is maintained by the National LIbrary of Medicine (NLM) which provides "patients, their family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies..."
>UCB Global's:"ambition is to transform the lives of people living with severe diseases. We focus on neurology and immunology disorder."
>Center Watch.com provides clinical trial information for both clinical research professional and patients, It also provides the latest information on drugs and medical therapies.
>CIRM:California Institute For Regenerative Medi:California Institute For Regenerative Medicine California's stem cell agency closely monitors progress in stem cell research and targets funding in areas most likely to lead to new therapies.
>Second Gnome-Brings microbiome science to the discovery and development of therapeutic drugs:[Further research pending a visionary investor]
What Is Crohn’s?
Currently affecting an estimated 780,000 people in the United States, Crohn’s disease (CD) is a chronic inflammatory illness of the digestive tract which can also affect the liver, eyes, joints and skin. Growth failure and malnutrition is an important complication in children with CD. About a 1/4 of newly diagnosed CD patients are children and young adults under 18 years old. We don’t know what causes Crohn’s and continued research is needed to better understand the disease
An “invisible disease”, most people with CD look like everyone else yet they may be suffering with severe abdominal pain, chronic diarrhea, intestinal bleeding, or required to take a handfuls of daily medications to keep the disease in remission. Increasing awareness of CD can help relieve the emotional hardship of managing a lifelong disease.
Is there a Cure?
No. There are many medications which can reduce the inflammation, decrease symptoms, and improve one’s quality of life. The type of medications, dosages, and combinations are unique to the individual. A number of CD patients may also undergo surgery such as an intestinal resection, but it does not guarantee against relapsing disease. There are many new medications on the horizon, but help is needed to continue the important research.
Adequate nutrition and a well balanced diet is an important facet to intestinal health and overall wellbeing. Currently, there is no specific “Crohn’s diet” known to treat the inflammation. There are certain foods that are more difficult to digest and may contribute to stomach discomfort. Medications and Intestinal inflammation may affect vitamin and mineral absorption. One’s health care provider can help guide the appropriate replacements.
OUTREACH & EDUCATION & RESEARCH
Thank You For Your Support
Our work is made possible by generous financial, in-kind, and volunteer contributions from the community. It is people like you that help us achieve our mission.
PATIENT ADVOCACY
Disclaimer: The materials in this website are not meant to be used for self-diagnosis or to replace the services of a medical professional. Healthcare information changes rapidly and thus, the materials should not be relied upon to be fully comprehensive or error free. Hope For Crohn's® does not recommend, endorse or make any warranties or representations of any kind with regard to the accuracy, completeness, timeliness, quality, efficacy or non-infringement of any of the programs, materials, products or other information provided on this website or by the companies or organizations linked or referred to in this website
NUTRITION & DIET
MEDICATIONS & SUPPLEMENTS
There are several medications & supplements available to help relieve the sypmtoms of Crohn's disease. There is no cure for Crohn's. These medications & supplements aid in helping patients get into remission.
Medications
1) Anti-inflammation medications
2) Cortisone or steroids
3) Immune system suppressors
4) Biological therapies
5) Antibiotics
6) Anti-diarrheal medications and fluid replacements
Supplements
1) Iron
2) Calcium
3) Vitamin D
Quick Links for more information>
®
We decided to form a group where Crohn's patients and their family, friends, and supporters can come together to share, learn, and socialize. We want you to know you are not alone. We invite Crohn's patients and their family and friends to login and talk and share/learn and tell their stories.
This platform is supported by Tapatalk. It is confidential and only registered members can join. It is family-friendly.
HOPE FOR CROHN'S SUPPORT & OUTREACH FORUM
SURGERY
Surgery is needed when symptoms do not respond to medical therapies or correct complications such as intestinal blockage, perforation, bleeding, abscess, or intestinal failure.
Surgeries
1) Proctocolectomy: Remove the recton, part of colon, or entire conlon
2) Ileostomy: Ostomy pouch is attached to the stoma and worn outside the body to collect stool
3) Intestinal resection surgery: Diseased section is removed
4) Intestinal rehabilitation & transplant
Quick Links for more information>
OUTREACH, EDUCATION, & RESEARCH
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